Entries by Mireille Roy

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Canadian Research osteoprotegerin (OPG)

Meeting with professor Jérôme Frenette about osteoprotegerin (OPG). We are producing a video series of interviews with Canadian researchers working on DMD. We have met many professors, and our videos will be coming up soon.  We wish to connect you, the DMD community, with the professors. You will be delighted to know their deepest motivation […]

Cycling across Canada to cure DMD

What’s it like to live with DMD? As a parent, to face the reality that your child has a fatal disease? As a person with DMD, to face an inevitable, premature death in your twenties? As a sibling, relative or friend, to face mourning your loss? The journey is beyond words.   Our Web short […]

Decision from the FDA’s Office for Ataluren

Today, PTC Therapeutics, Inc, announced that the Office of New Drugs of the U.S. Food and Drug Administration has reiterated the FDA’s prior position and denied PTC’s appeal of the Complete Response Letter concerning the New Drug Application (NDA) for ataluren. In its letter, the Office of New Drugs recommended a possible path forward for […]

Short Docs series: Portrait of Duchenne Canada

Our web short documentary series, “Portrait of Duchenne Canada”, will be coming son!  We will present the experiences of families and children with DMD across Canada.What’s it like to live with Duchenne muscular dystrophy (DMD)? As a parent, to face the reality that your child has a fatal disease? As a person with DMD, to face […]

BRUCE’S UNBELIEVABLE GIFT TO HELP HIS PATIENT

Bruce Babington, an Osteopath, based in Ste-Agathe-des-Monts, Québec, is taking on the challenge of cycling across Canada in July 2018. He was inspired by his patient, Anakin Lacasse, who is afflicted with Duchenne muscular dystrophy. Why riding across Canada? To spread knowledge about DMD and raise money for research, the only hope for children like […]

TAKING ACTION PORTRAIT OF DUCHENNE – WHEN LIFE CHANGES

In this inspiring interview of our series “Portrait of Duchenne,” La Fondation La Force talks with Émilie Meeus, Oscar’s mother, raising funds for research into Duchenne muscular dystrophy (DMD). Émilie’s life changed when her three-year-old son Oscar was diagnosed with DMD. She decided to do something to make a difference including by starting an association to […]

News

2017, November 17th On a regular basis, team La Force will relay breaking news to the DMD community in News! our latest blog. We provide news highlights to give you quick-and-easy access to the most recent information about what’s happening worldwide in DMD advocacy and, more importantly, advances in therapy and the availability of new […]

The FDA closes the door to the approval of ataluren

The FDA has opted not to approve a treatment for DMD, ataluren from PTC Therapeutics. The FDA requires the PTC company to conduct yet another clinical trial in order to consider approval of the treatment. Stuart W. Peltz, CEO of PTC Therapeutics Inc., responded that a formal request called “dispute resolution” will be filed with […]

TAKING ACTION – PORTRAIT OF DUCHENNE – WHEN LIFE CHANGES

Alex Smith CEO, Harrison’s Fund, United Kingdom In this eighth interview of our series “ Portrait of Duchenne ”, La Fondation La Force talks with Alex Smith, CEO of Harrison’s Fund, a British-based, leading charity for research into Duchenne muscular dystrophy (DMD). Alex’s life changed when his son Harrison, now 11, was diagnosed with DMD. He decided […]