Together for change

TEXT AS PUBLISHED IN PORTFOLIO MAGAZINE SOTHERBY’S

We are thankful to Sotherby’s International Realty team for publishing this article.

“Very little is done in Canada for the DMD and parents are send back home with no hope when it is no longer the case. On long term La Force is to become a guiding light for patient with DMD”

The Fondation La Force was created following the diagnostic of Anakin Lacase (son MC president Foudation).  Muscular Dystrophy is a terrible genetic disease, it is fatal, with no cure and lead to premature death (about 20 years old). Looking at your kid slowly dying, is the worst for parents, family and friends.  The Foudation was the positive that resides in our decision to become actors rather than spectators in this terrible tragedy.  Very little is done in Canada for DMD, Parents are most often faced with the sole option of having to prepare for early death when this is no longer the case. New and emerging technology provides hope but it’s practically inaccessible, mainly due to the disease’s lack of notoriety. People would like to help but most don’t know about the challenges associated with rare disease treatment accessibility and don’t know how they can help. Furthermore, without strategic and leveraged effort, individuals’ voices are ineffective. Those who want to help need to do so in unison and in a highly focused way to bring about change.

«Strengh in Unity»

Our long-term goal is to become the leading representative group for patients with DMD in Canada.  Our mission is to make DMD treatment available immediately to kids in need. Our approach is first and foremost to raise consumer and political awareness by way of information campaigns. We use grass roots sporting events, social media leverage, representations and high level contacts to achieve our goal. We are also participating in the funding of promising research we have to dedicated funds one for Dr Rudniki and one for Dr Jérôme Frenette.

«La Force: powered by the community»

The effort of team 1 VIE-Tess combine with the right use of web marketing had a huge impact this year for La Force.  Our online video had over 80,000 views, we had extensive local media coverage and a segment on RDS TV show…

All this media visibility, gave us the right tools to have access to a new treatment not approuved in Canada.  The rise of the community in Mont-Tremblant have been simply amazing, last year people in the community (not only close friends) organise spontaneously fund raising event of all kind. La Force have been powered, by pure compassion and every sporting events and every single person wearing our t-shirt have built a movement and made us believe we can make a difference in the race to a cure.

The strength to change things

Becoming a mom is living every moment projecting yourself into the future with your child. Parenting has its share of daily challenges, but the sleepless nights rocking baby to sleep, organizing a birthday for a teen or repainting your son’s first apartment is worth more than anything else.

Excerpt from Journal Accès, continue reading here (french only)

The magic touch!

On November first, an out of the ordinary Happy Hour event was held at Tremblant’s Le Doigté hair salon. It was in fact a fundraiser for which all proceeds were to be donated to La Force Foundation. The money raised will be used towards research in the fight against Duchenne Muscular Dystrophy, and the Anakin Project.

Excerpt from Journal Accès, continue reading here (french only)

Passion leads to great things

This man, full of Joie de vivre, is among the many parents who have a child afflicted with a rare disease. Duchenne Muscular Dystrophy, or DMD, is a degenerative muscle disease for which there is currently no cure or treatment. He and his wife, Marie-Catherine, named this young man Anakin. In order to help advance research efforts, they created LA FORCE FOUNDATION.

Excerpt from SnowboardQuebec.com, continue reading here (french only)

An event that helps The Force with force!

On Saturday, November 15, a fundraiser for the benefit of the Anakin Project, hosted by La Force Foundation, met with an unexpected level of success: a sporting event that people will remember!

Excerpt from Journal Accès