We are excited to share that the next Defeat Duchenne Family Forum will take place in Montréal, Québec, on Saturday, May 2, 2020.

Presented by PTC Therapeutics and in partnership with Jesse’s Journey, this unique educational event provides the opportunity for you – families and caregivers navigating the Duchenne journey, to come together with researchers, clinicians, and industry professionals for a day of education and inspiration. More than that, the Defeat Duchenne Family Forum provides a support network. A connection opportunity for you to know that they are not alone and together, we can defeat Duchenne. Registration is free, and the day includes take-away resources and all meals (breakfast, lunch, and snacks). Event page here + Facebook event page here

  • What: Defeat Duchenne Family Forum
  • When: Saturday, May 2, 2020 | 9 a.m. – 4 p.m
  • Followed by: Social & Vendor Fair from 4 – 6 p.m
  • Where: Shriners Hospital for Children (1003 Décarie Blvd, Montréal, Québec H4A 0A9)

Stay tuned as we announce registration and full program details in early 2020.


The first-ever Duchenne Family Forum In London, Ontario

May 25, 2019, in London, Ontario

This unique event – tailored to families in Canada affected by Duchenne muscular dystrophy – featured updates about the latest research, clinical trials recruiting in Canada, and more. Read more here.

Defeat Duchenne Family Forum in Calgary, Alberta

November 2, 2019, in Calgary, Alberta

More than 75 Canadians came together for the inaugural Defeat Duchenne Family Forum presented by PTC Therapeutics on Saturday, November 2, 2019, in Calgary, Alberta. Families from across Western Canada affected by Duchenne muscular dystrophy came together with world-renowned researchers, clinicians, and industry professionals for a day of education, inspiration, and hope. Read more here.

More links

Learn more about Jesse’s Journey here.

Watch our video about John Davidson, the godfather of the Canadian Duchenne community here.

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