DMD Quick guide
Duchenne muscular dystrophy (DMD) is a rare disease for which there is no cure. To ensure that young patients receive treatments that will relieve and delay the progress of DMD, it is important to establish a diagnosis quickly and to identify the genetic cause of the disease.
The information that follows will direct you to new experimental treatments and clinical trials that may help your child. As a parent, family member, friend or member of the DMD community, you stand to gain a much better understanding of DMD with this information in hand.
The following tips are taken from “The Diagnosis and Management of Duchenne Muscular Dystrophy.” This online guide for families summarises the results of an international consensus on the medical care of DMD, which was published in the British journal Lancet Neurology. The US Centers for Disease Control and Prevention (CDC), in collaboration with patient advocacy groups and the TREAT-NMD network, supported its development. To access the website, click here.