Dystrophie musculaire de Duchenne Dystrophie musculaire de Duchenne Dystrophie musculaire de Duchenne

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Monthly Archive for: "May, 2018"
STAT3 a new research to treat DMD
By Marie
In Research
Posted 31 May 2018

STAT3 a new research to treat DMD

Canadian Research series This video series of interviews features Canadian scientists who work on solutions for Duchenne muscular dystrophy (DMD). We wish to connect you – the DMD community – [...]

Girls with Duchenne: The Great Forgotten
By Marie
In Testimonial
Posted 28 May 2018

Girls with Duchenne: The Great Forgotten

Only one woman in 50 million is affected by Duchenne muscular dystrophy (DMD). Considered as a male disease, DMD usually affects boys (1 in 3500). Some people don’t know that they exist. [...]

Portrait of Duchenne – For the love of his brother!
By Marie
In Testimonial
Posted 18 May 2018

Portrait of Duchenne – For the love of his brother!

What’s it like to live with DMD? As a parent, to face the reality that your child has a fatal disease? As a person with DMD, to face an inevitable, premature death in your twenties? As a sibling, [...]

Portrait of Duchenne – Victor’s unforgettable experience!
By Marie
In Testimonial
Posted 11 May 2018

Portrait of Duchenne – Victor’s unforgettable experience!

  Giving an incredible experience to your child Victor Morand, 11 years old: “I like it because they give you a lot of encouragement and it’s one of the only activities I can do with my [...]

Capricor initiates HOPE-2 clinical trial
By Marie
In News, Research
Posted 10 May 2018

Capricor initiates HOPE-2 clinical trial

One of the objectives of our team is to inform you about new treatments. Here’s the latest news from a recent press released by Capricor which announces the clinical trial HOPE-2. Enjoy [...]

Edasalonexent: Positive results and no side effects
By Marie
In News, Research
Posted 10 May 2018

Edasalonexent: Positive results and no side effects

One of the objectives of our team is to inform you about new treatments. Here’s the latest news from a recent Catabasis press release about edasalonexent. Enjoy reading and thank you for [...]

A clinical trial on utrophin modulation is completed
By Marie
In News, Research
Posted 10 May 2018

A clinical trial on utrophin modulation is completed

One of the objectives of our team is to inform you about new treatments. You can catch up on the last news in the latest press release by Summit Therapeutics company about ezutromid, a utrophin [...]

Portrait of Duchenne – Every action counts!
By Marie
In Research, Testimonial
Posted 4 May 2018

Portrait of Duchenne – Every action counts!

A chance encounter launched groundbreaking DMD research When Max Sedmihradsky was two-years-old, he received the DMD diagnosis. The news was devastating beyond words for his parents Kerry and [...]

Articles récents

  • The global day of giving
  • EMBARK, gene therapy for the treatment of DMD
  • Part B of MOMENTUM study of SRP-5051 in patients with DMD
  • World Duchenne Awareness Day 2021
  • ENDEAVOR, gene therapy for DMD

Catégories

  • Fundraising
  • in the Medias
  • News
  • Research
  • Testimonial
  • Treatments

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