Dystrophie musculaire de Duchenne Dystrophie musculaire de Duchenne Dystrophie musculaire de Duchenne

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Monthly Archive for: "November, 2019"
The Power of Giving Back
By Marie
In Fundraising, in the Medias
Posted 18 November 2019

The Power of Giving Back

GivingTuesday – the global day of giving Join us for the 7th annual GivingTuesday on December 3, 2019! GivingTuesday is a global day of giving that happens each year after Black Friday and [...]

A DMD gene therapy has been placed on clinical hold
By Marie
In News
Posted 13 November 2019

A DMD gene therapy has been placed on clinical hold

Following the occurrence of a safety incident, the FDA has placed on hold the clinical trial for SGT-001, the Solid’s gene therapy candidate for Duchenne muscular dystrophy (DMD). This [...]

Teaming up to take down Duchenne
By Marie
In in the Medias
Posted 12 November 2019

Teaming up to take down Duchenne

Research and collaboration are bringing Canadians closer to a cure than ever before. However, many parents fear that access to treatment may come too late for their child. by Denise Deveau, Sep [...]

Living with DMD, Carl’s resilience
By Marie
In Testimonial
Posted 5 November 2019

Living with DMD, Carl’s resilience

Notes from the “Living with DMD” web-doc Tecima Productions team. Carl’s resilience. Our small production team travelled across Canada, meeting with families whose children have Duchenne [...]

A Race Against Time to Access New Treatments
By Marie
In Testimonial
Posted 4 November 2019

A Race Against Time to Access New Treatments

Duchenne muscular dystrophy seen through the eyes of the families There are over 7,000 rare diseases in Canada. Duchenne muscular dystrophy (DMD) is one of them. DMD afflicts children, especially [...]

Articles récents

  • The global day of giving
  • EMBARK, gene therapy for the treatment of DMD
  • Part B of MOMENTUM study of SRP-5051 in patients with DMD
  • World Duchenne Awareness Day 2021
  • ENDEAVOR, gene therapy for DMD

Catégories

  • Fundraising
  • in the Medias
  • News
  • Research
  • Testimonial
  • Treatments

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