{"id":4046,"date":"2016-10-14T12:39:31","date_gmt":"2016-10-14T12:39:31","guid":{"rendered":"https:\/\/laforcedmd.com\/?p=4046"},"modified":"2022-05-03T18:25:29","modified_gmt":"2022-05-03T18:25:29","slug":"driving-with-duchenne-muscular-dystrophy-dmd","status":"publish","type":"post","link":"https:\/\/laforcedmd.com\/en\/driving-with-duchenne-muscular-dystrophy-dmd\/","title":{"rendered":"Disability doesn\u2019t stop Shaan from driving!"},"content":{"rendered":"<h3 class=\"Body\"><span style=\"font-size: 14.0pt;\">You CAN drive with Duchenne Muscular Dystrophy (DMD)!<\/span><\/h3>\n<p>Being able to drive is a dream that means a lot to any teenager. Shaan Lail is living that dream. Even though he has Duchenne Muscular Dystrophy (DMD), Shaan will soon be driving his own modified SUV. Shaan is the first Canadian to drive with a state-of-the-art Swiss electronic driving system called Joysteer. This new technology has given more independence to people with disabilities.<\/p>\n<h3>Since Shaan was little, he\u2019s always been really into cars, so being able to drive his own vehicle is a real dream come true for him.<\/h3>\n<blockquote><p>\u201cI didn\u2019t wanted DMD to steal away the pleasure of driving,\u201d his mother told me right away. \u201cYou see, this disease takes so much away from these boys and young men. Ever since he was very small, Shan\u2019s always talked about cars, cars, cars and more cars\u2026\u00a0 I wanted to do everything in my power to make sure this dream wasn&#8217;t one of the things he was robbed of.<\/p><\/blockquote>\n<p>Shaan is doing great in his life. At 19 years old, he\u2019s a student at the University of British Columbia (UBC). His long-term professional dream is to become a lawyer.If you\u2019re familiar with DMD, you know that it is a degenerative and progressive life-limiting disease that relentlessly steals away muscle strength. But, somehow, Shaan is defying DMD.<\/p>\n<h3>Behind every child with \u00a0Duchenne Muscular Dystrophy (DMD), there is always a strong parent.<\/h3>\n<p>I asked Shaan\u2019s mother, Vee, how she manages to keep her son motivated to pursue his dreams. What she said really touched me.<\/p>\n<blockquote><p>\u201cEver since Shaan was small whenever he was upset about something he couldn&#8217;t do, I tried to teach him to always focus on his abilities rather than his disabilities.\u00a0 I used to demonstrate by write the word DISABILITY and draw a big X over the letters DIS to reveal the word ABILITY,\u201d Vee told me. I believe and I taught Shaan that one cannot control what life throws at you &#8211; you just have to do the best you can.&#8221;<\/p><\/blockquote>\n<p>Even with all of Shaan\u2019s positive energy, Vee tells me that life with DMD is never easy. It takes a lot of energy to get around campus and keep up with his courses.\u00a0 But driving a car is a great milestone for Shaan.\u00a0 How accessible is the state-of-the-art Swiss electronic driving system?<\/p>\n<h3>How accessible is the state-of-the-art Swiss electronic driving system?<\/h3>\n<p>Unfortunately, right now, it\u2019s expensive. Vehicle conversion or new vehicles start at $40,000, and used vans may cost about $15,000 or more. The driving system is another at least $70,000 more.\u00a0 Even though the technology is pricey, at least the possibility is there. Hopefully, prices will drop as more and more people with disabilities outfit their cars. And, families can always try crowdfunding as an option.<\/p>\n<p>Congratulations to Shaan\u2019s family for getting this technology to Canada!\u00a0\u00a0 It\u2019s very encouraging for the DMD community.<\/p>\n<p>&nbsp;<\/p>\n<p>Watch this <a href=\"http:\/\/www.cbc.ca\/news\/canada\/british-columbia\/18-year-old-ubc-student-with-disability-first-in-canada-to-use-swiss-driving-system-1.3789317\">video<\/a> for more information.<\/p>\n<p>More about Joysteer <a href=\"http:\/\/www.joysteer.ch\/?lang=en\">here<\/a>.<\/p>\n<p>Send us your inspirational <a href=\"\/?page_id=3435\">story here.<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>You CAN drive with Duchenne Muscular Dystrophy (DMD)! Being able to drive is a dream that means a lot to any teenager. Shaan Lail is living that dream. Even though he has Duchenne Muscular Dystrophy (DMD), Shaan will soon be driving his own modified SUV. Shaan is the first Canadian to drive with a state-of-the-art [&hellip;]<\/p>\n","protected":false},"author":3,"featured_media":4779,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[12,20],"tags":[],"class_list":["post-4046","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","category-testimonial"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Duchenne Muscular Dystrophy won&#039;t stop Shaan from driving!<\/title>\n<meta name=\"description\" content=\"You can drive with Duchenne Muscular Dystrophy (DMD)! Being able to drive is a dream that means a lot to any teenager. 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