{"id":4412,"date":"2017-03-14T12:52:33","date_gmt":"2017-03-14T12:52:33","guid":{"rendered":"https:\/\/laforcedmd.com\/?p=4412"},"modified":"2022-05-03T18:23:07","modified_gmt":"2022-05-03T18:23:07","slug":"canadian-research-for-duchenne-muscular-dystrophy","status":"publish","type":"post","link":"https:\/\/laforcedmd.com\/en\/canadian-research-for-duchenne-muscular-dystrophy\/","title":{"rendered":"Joining forces to contribute to Canadian research projects"},"content":{"rendered":"

Being on the receiving end of a diagnosis of Duchenne Muscular Dystrophy is a very difficul<\/strong>t event for parents. Marie-Catherine Du Berger, creator of La Force<\/em> Foundation knows something about it. The creation of the foundation allowed her to become an \u201cactor\u201d instead of being a spectator of her son Anakin\u2019s illness. Contributing to Canadian research for Duchenne muscular dystrophy has been an integral part of La Force<\/em>\u2019s mission since the very beginning. Hope lies in science and new treatments.<\/strong><\/p>\n

For their part, Jean-Philippe Morand and his wife, M\u00e9lany Ouellet, a Quebec City region family, got on their pedals to get involved and bring their contribution to the DMD community. Their son Victor was initially diagnosed with Becker\u2019s muscular dystrophy. Subsequently, this became DMD, the most severe form of muscular dystrophy. This meant going through two traumas instead of one.<\/p>\n

Last Fall, for the fourth consecutive year, the Morand-Ouellet clan organized the Dystrospin<\/em><\/a>. This is a spinning marathon where some participants pedal for up to 10 consecutive hours. In October 2016, Dystrospin<\/em> partnered with the La Force<\/em> Foundation to donate more than $12,000 to two Quebec-based researchers: Dr. J\u00e9r\u00f4me Frenette (OPG) and Dr.\u00a0Jacques Tremblay (CRISPR\/Cas\u00a09). Victor will also get a high-performance “Team Hoyt<\/a>” wheelchair, which he\u2019ll be able to use to take part in sports. In addition, Jean-Philippe Morand intends to participate in other sports challenges with his son, in order to raise awareness about Duchenne muscular dystrophy.<\/p>\n

\"6K-JFrenette-2017-LR\"\"6K-JTremblay-LR\"<\/p>\n

Living with Duchenne muscular dystrophy is a difficult thing. Nevertheless, this contribution to two research projects by families is proof that all difficult situations can lead to positive actions. It\u2019s a gesture of love and courage to hand over this sum, with Victor and Anakin as their inspiration. We hope to bring hope to all families with children with DMD. There is strength in unity: together we can make a big difference.<\/strong><\/p>\n

 <\/p>\n

For more information about\u00a0research project :<\/h3>\n

PROJECT 1\u00a0\u2013Osteoprotegerin<\/em> (OPG)<\/strong><\/p>\n

Team\u00a0Centre Hospitalier Universitaire de Qu\u00e9bec <\/a>\u00a0about\u00a0osteoprotegerin<\/em><\/strong>\u00a0(OPG).\u00a0(read more<\/a>)<\/strong><\/p>\n

PROJECT 2 \u2013 CRISPR\/Cas9 (Read more<\/a>)<\/strong><\/p>\n

Team\u00a0Jacques Tremblay for\u00a0\u00abCorrection du g\u00e8ne de la dystrophie avec la technologie CRISPR\/Cas9\u00bb.\u00a0<\/span><\/p>\n

 <\/p>\n

To learn more about new treatments you can subscribe\u00a0to our newsletter here<\/a><\/p>\n

To make a donation<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Being on the receiving end of a diagnosis of Duchenne Muscular Dystrophy is a very difficult event for parents. Marie-Catherine Du Berger, creator of La Force Foundation knows something about it. The creation of the foundation allowed her to become an \u201cactor\u201d instead of being a spectator of her son Anakin\u2019s illness. Contributing to Canadian […]<\/p>\n","protected":false},"author":2,"featured_media":4769,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[17],"tags":[],"class_list":["post-4412","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-research"],"yoast_head":"\nLa Force donate to two Canadian research for Duchenne muscular dystrophy<\/title>\n<meta name=\"description\" content=\"La Force donate to two Canadian research for Duchenne muscular dystrophy: Dr. J\u00e9r\u00f4me Frenette (OPG) and Dr. Jacques Tremblay (CRISPR\/Cas 9)\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/laforcedmd.com\/en\/canadian-research-for-duchenne-muscular-dystrophy\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" 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