{"id":4963,"date":"2017-05-26T15:36:44","date_gmt":"2017-05-26T15:36:44","guid":{"rendered":"https:\/\/laforcedmd.com\/?p=4963\/"},"modified":"2022-05-03T18:22:25","modified_gmt":"2022-05-03T18:22:25","slug":"jean-philippe-victor-race-for-dmd","status":"publish","type":"post","link":"https:\/\/laforcedmd.com\/en\/jean-philippe-victor-race-for-dmd\/","title":{"rendered":"Jean-Philippe and Victor race for DMD"},"content":{"rendered":"

Learning that your son is suffering from Duchenne muscular dystrophy is watching your child lose his muscular ability month after month. This is Jean-Philippe Morand\u2019s reality: his son Victor is stricken with Duchenne muscular dystrophy. In adversity, some men go beyond their limits, and this is what Jean-Philippe will do this Sunday, May 28, by participating in the Ottawa Marathon in the company of his son Victor.<\/strong><\/p>\n

Actually, for the past 4 years, the Morand family has been holding a fundraising event called the \u201cDystrospin<\/em>\u201d. A portion of the money raised was invested in the purchase of a suitable wheelchair. It\u2019s because of this kind of generosity that Jean-Philippe is able to participate in the Ottawa Marathon with his son. There\u2019s nothing better than a father\u2019s courage to raise awareness about Duchenne muscular dystrophy.<\/p>\n

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Hope for treatment<\/strong><\/p>\n

Duchenne muscular dystrophy is an incurable and 100% fatal disease. Duchenne muscular dystrophy is a rare genetic disorder that affects mainly boys. The progression of DMD is unforgiving: the body\u2019s muscles gradually weaken, leaving the boys in a wheelchair at the age of 12, with a life expectancy of 20 to 30 years. Today there is hope for DMD, and several new treatments are on the horizon. This hope motivates Jean-Philippe to go beyond his limits for his son; but what he does also benefit all children with DMD.<\/p>\n

Every effort to raise awareness about this rare and devastating disease will help us to facilitate access to new treatments.<\/p>\n

For this reason, we, from the bottom of our hearts, invite you to share this story of courage.<\/p>\n

We at La Force<\/em> are proud to support Jean-Philippe Morand and his family.<\/p>\n

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To learn more about:<\/strong><\/p>\n