{"id":5300,"date":"2017-08-31T15:19:42","date_gmt":"2017-08-31T15:19:42","guid":{"rendered":"https:\/\/laforcedmd.com\/?p=5300\/"},"modified":"2022-05-03T18:20:46","modified_gmt":"2022-05-03T18:20:46","slug":"its-done-704-km-in-hope-to-cure-duchenne","status":"publish","type":"post","link":"https:\/\/laforcedmd.com\/en\/its-done-704-km-in-hope-to-cure-duchenne\/","title":{"rendered":"It&#8217;s done! 704 KM in hope to cure Duchenne"},"content":{"rendered":"<p><strong>It&#8217;s done! After completing the SSQ-Marathon Qu\u00e9bec-L\u00e9vis this Sunday, August 28. Jean-Philippe Morand and his son Victor have cycled and ran a total of 704 KM. The father and son are on a mission to raise awareness about Duchenne. <\/strong><strong>Every effort to raise awareness about this rare and devastating disease will help us facilitate access to new treatments. Hope to cure Duchenne.<\/strong><\/p>\n<h3><strong>Victor\u00a0was\u00a0diagnosed\u00a0with Duchenne<\/strong><\/h3>\n<p>DMD is an incurable and 100% fatal disease. Duchenne muscular dystrophy is a rare genetic disorder that affects mainly boys. The progression of DMD is unforgiving: the body&#8217;s muscles gradually weaken, leaving the boys in a wheelchair at the age of 12, with a life expectancy of 20 to 30 years. Today there is hope for DMD, and several new treatments are on the horizon.<\/p>\n<h3><strong>Raising\u00a0funds\u00a0and\u00a0awareness\u00a0to\u00a0access\u00a0new treatments<\/strong><\/h3>\n<p>Within the next 5 to 10 years (or even before then), some new treatment options should be on their way to completion.\u00a0 Now, two treatments are approved in the US and Europe, but not yet available in Canada.\u00a0 Therefore, educating people about what Duchenne is and about access to new therapies is extremely important. \u00a0It will help children like Victor access the latest treatments rapidly before the disease has evolved to much.<\/p>\n<h3><strong>Pioneers\u00a0in\u00a0the Canadian DMD community<\/strong><\/h3>\n<p>La Force has been associated with &#8220;Dystrospin&#8221; since 2016. \u00a0a fundraising event organized by the Morand family for the past four years. \u00a0A portion of the money raised was invested in the purchase of a suitable wheelchair. It&#8217;s because of this kind of generosity that Jean-Philippe can participate in sports events to raise awareness about Duchenne muscular dystrophy and access to new treatments. This year the &#8220;Dystrospin&#8221; will give the total profit of this event to two Quebec based researchers. Will provide to Dr. Jacques Tremblay&#8217;s research on CRISPR-Cas9 and will give to Dr. J\u00e9r\u00f4me Frenette to his study on\u00a0Osteoprotegerin.<\/p>\n<h3>Support our cause<\/h3>\n<p>There&#8217;s nothing better than a father&#8217;s courage to raise awareness about Duchenne muscular dystrophy. Today there is hope for DMD, and several new treatments are on the horizon. This hope motivates Jean-Philippe to go beyond his limits for his son, but what he does also benefit all children with DMD.<\/p>\n<p style=\"text-align: center;\">Every effort to raise awareness about this rare and devastating disease will help us facilitate access to new treatments.<\/p>\n<p style=\"text-align: center;\">We at <em>La Force DMD<\/em> are proud to support Jean-Philippe Morand and his family.<\/p>\n<p><b><span lang=\"EN-US\" style=\"margin: 0px; color: #444444; font-family: 'Open Sans',sans-serif; font-size: 10.5pt;\">To learn more:<\/span><\/b><\/p>\n<p><span lang=\"EN-US\">\u00b7<span style=\"font: 7pt 'Times New Roman'; margin: 0px; font-size-adjust: none; font-stretch: normal;\">\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 <\/span><\/span><a href=\"https:\/\/www.facebook.com\/dystrospin\/?fref=ts\" target=\"_blank\" rel=\"noopener noreferrer\"><span lang=\"EN-US\" style=\"margin: 0px; color: blue; font-family: 'Open Sans',sans-serif; font-size: 10.5pt; text-decoration: none;\">Dystrospin<\/span><\/a><\/p>\n<p><span lang=\"EN-US\">\u00b7<span style=\"font: 7pt 'Times New Roman'; margin: 0px; font-size-adjust: none; font-stretch: normal;\">\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 <\/span><\/span><a href=\"\/?p=4769\" target=\"_blank\" rel=\"noopener noreferrer\"><span lang=\"EN-US\" style=\"margin: 0px; color: blue; font-family: 'Open Sans',sans-serif; font-size: 10.5pt; text-decoration: none;\">La Force &amp; Dystrospin association\u00a0<\/span><\/a><\/p>\n<p><span lang=\"EN-US\">\u00b7<span style=\"font: 7pt 'Times New Roman'; margin: 0px; font-size-adjust: none; font-stretch: normal;\">\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 <\/span><\/span><a href=\"http:\/\/www.teamhoyt.com\/\" target=\"_blank\" rel=\"noopener noreferrer\"><span lang=\"EN-US\" style=\"margin: 0px; color: blue; font-family: 'Open Sans',sans-serif; font-size: 10.5pt; text-decoration: none;\">Running chair<\/span><\/a><\/p>\n<p><span lang=\"EN-US\">\u00b7<span style=\"font: 7pt 'Times New Roman'; margin: 0px; font-size-adjust: none; font-stretch: normal;\">\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 <\/span><\/span><span style=\"font-size: 10.5pt;\"><a href=\"\/?page_id=3426\" target=\"_blank\" rel=\"noopener noreferrer\"><span lang=\"EN-US\" style=\"margin: 0px; color: blue; font-family: 'Open Sans',sans-serif; font-size: 10.5pt;\">Research Dr. Jacques Tremblay &#8211; CRISPR-CAS9<\/span><\/a><\/span><\/p>\n<p><span lang=\"EN-US\">\u00b7<span style=\"font: 7pt 'Times New Roman'; margin: 0px; font-size-adjust: none; font-stretch: normal;\">\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 <\/span><\/span><span style=\"font-size: 10.5pt;\"><a href=\"\/?page_id=3424\" target=\"_blank\" rel=\"noopener noreferrer\"><span lang=\"EN-US\" style=\"margin: 0px; color: blue; font-family: 'Open Sans',sans-serif; font-size: 10.5pt;\">Research on Osteoprotegerin<\/span><\/a><\/span><\/p>\n","protected":false},"excerpt":{"rendered":"<p>It&#8217;s done! After completing the SSQ-Marathon Qu\u00e9bec-L\u00e9vis this Sunday, August 28. Jean-Philippe Morand and his son Victor have cycled and ran a total of 704 KM. The father and son are on a mission to raise awareness about Duchenne. Every effort to raise awareness about this rare and devastating disease will help us facilitate access [&hellip;]<\/p>\n","protected":false},"author":3,"featured_media":5308,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[20],"tags":[],"class_list":["post-5300","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-testimonial"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Its done! 704 km in hope to cure Duchenne La Force dmd<\/title>\n<meta name=\"description\" content=\"Completing the SSQ-Marathon Qu\u00e9bec-L\u00e9vis. 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