{"id":9063,"date":"2019-11-12T14:12:14","date_gmt":"2019-11-12T14:12:14","guid":{"rendered":"https:\/\/laforcedmd.com\/?p=9063"},"modified":"2022-05-03T18:08:54","modified_gmt":"2022-05-03T18:08:54","slug":"teaming-up-to-take-down-duchenne","status":"publish","type":"post","link":"https:\/\/laforcedmd.com\/en\/teaming-up-to-take-down-duchenne\/","title":{"rendered":"Teaming up to take down Duchenne"},"content":{"rendered":"<h2 id=\"post-excerpt\" class=\"post-excerpt\">Research and collaboration are bringing Canadians closer to a cure than ever before. However, many parents fear that access to treatment may come too late for their child.<\/h2>\n<p><em><span class=\"authorName\">by Denise Deveau, <\/span>Sep 6, 2019, &gt; published on <span style=\"color: #0000ff;\"><a style=\"color: #0000ff;\" href=\"https:\/\/www.macleans.ca\/sponsored\/teaming-up-to-take-down-duchenne\/\" target=\"_blank\" rel=\"noopener noreferrer\">Maclean&#8217;s<\/a><\/span><\/em><\/p>\n<p class=\"sponsored_message\"><em>A community-based initiative led by <span style=\"color: #0000ff;\"><a style=\"color: #0000ff;\" href=\"https:\/\/www.jessesjourney.com\/\" target=\"_blank\" rel=\"noopener noreferrer\">Jesse&#8217;s Journey<\/a><\/span>, in collaboration with <span style=\"color: #0000ff;\"><a style=\"color: #0000ff;\" href=\"https:\/\/duchennecanada.org\/\" target=\"_blank\" rel=\"noopener noreferrer\">Stand for Duchenne Canada.<\/a><\/span><\/em><\/p>\n<p><a href=\"https:\/\/www.macleans.ca\/sponsored\/teaming-up-to-take-down-duchenne\/\"><img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-9071\" src=\"https:\/\/laforcedmd.com\/wp-content\/uploads\/2019\/10\/Capture-de\u0301cran-le-2019-10-15-a\u0300-09.45.32-300x139.png\" alt=\"\" width=\"75\" height=\"35\" \/><\/a><\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<hr \/>\n<p><strong>For Nicola Worsfold and her husband Ed, the day they were told their six-year-old son Owen had Duchenne Muscular Dystrophy (DMD) is one they\u2019ll never forget.<\/strong><\/p>\n<p>&nbsp;<\/p>\n<blockquote><p><strong>Nicola Worsfold &#8211; <\/strong>\u201cIt was like someone took a huge sledgehammer and knocked us off our feet. We found out that there was nothing we could do because, at the time, there was no cure or medication that could help.\u201d<\/p><\/blockquote>\n<p>&nbsp;<\/p>\n<p>A progressive muscular disorder, DMD is caused by a genetic mutation that prevents the body from producing the structural protein needed to protect muscle cells. The Canadian Neuromuscular Disease Registry estimates that there are less than 800 cases in Canada, with almost all affecting boys.<\/p>\n<p>As it stands today, DMD is fatal. A child with the disorder becomes weaker over time until they succumb to the disease in their early to mid-twenties. It can be inherited or, as with Owen\u2019s diagnosis, the result of a random spontaneous mutation.<\/p>\n<p>&nbsp;<\/p>\n<blockquote>\n<h4 style=\"text-align: center;\"><span style=\"color: #0000ff;\"><a style=\"color: #0000ff;\" href=\"https:\/\/www.macleans.ca\/sponsored\/teaming-up-to-take-down-duchenne\/\" target=\"_blank\" rel=\"noopener noreferrer\">Read the full article here<\/a><\/span><\/h4>\n<\/blockquote>\n","protected":false},"excerpt":{"rendered":"<p>Research and collaboration are bringing Canadians closer to a cure than ever before. However, many parents fear that access to treatment may come too late for their child. by Denise Deveau, Sep 6, 2019, &gt; published on Maclean&#8217;s A community-based initiative led by Jesse&#8217;s Journey, in collaboration with Stand for Duchenne Canada. &nbsp; &nbsp; For [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":9280,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[11],"tags":[],"class_list":["post-9063","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-in-the-medias"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Teaming up to take down Duchenne - La Force dmd<\/title>\n<meta name=\"description\" content=\"Research and collaboration are bringing Canadians closer to a cure than ever before. 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