4 ways to take action!
Become aware of your genetic profile
Are you eligible for a new therapy for DMD – one that targets a specific genetic change or mutation in your DNA?
Educate yourself
Stay informed about which new treatments target different genetic mutations in DMD and about ongoing clinical trials.
- Learn more about the symptoms, diagnosis and management of DMD.
- Learn about drug research
- The drug approval process
- The reimbursement of drug costs in Canada
Share your story
Be ready to become a spokesperson for your own cause. Today, anything is possible! The best person to explain about Duchenne muscular dystrophy is you.
Defeat DMD Now
You can meet with local federal and provincial MPs to let them know that you have DMD and are awaiting new treatments on the way. Inform them about DMD and invite them to have an impact on your future by helping to lobby for new treatments and fund DMD research.
Stand for Duchenne Canada, Jesse’s Journey and La Force DMD have come together with the Duchenne muscular dystrophy (DMD) community to voice our concern regarding the current lack of Health Canada-approved treatment options for Canadians living with this debilitating and life-limiting rare disease. Despite the fact that new therapies – Translarna (ataluren) and Exondys 51 (eteplirsen) – have been approved in Europe and the United States for several years now, in Canada we are still waiting.
