Take Action

You can help to broaden awarness

about this rare and devastating disease.

Yes, you can take action!

The Force needs your help to spread the word about this rare and devastating disease.

Raising awareness about Duchenne muscular dystrophy (DMD) is essential. You have an indispensable role to play in raising public awareness around issues that affect our loved ones afflicted with DMD!

Sensitize key players in Quebec and across Canada, including your provincial and national MPs. A key element in your advocacy efforts is to share knowledge about new treatments (currently not available), so that they may become available quickly to children and young adults with DMD.

4 ways to take action!

Become aware of your genetic profile

Are you eligible for a new therapy for DMD – one that targets a specific genetic change or mutation in your DNA?

Educate yourself

Stay informed about which new treatments target different genetic mutations in DMD and about ongoing clinical trials.

Share your story

Be ready to become a spokesperson for your own cause. Today, anything is possible! The best person to explain about Duchenne muscular dystrophy is you.

Defeat DMD Now

You can meet with local federal and provincial MPs to let them know that you have DMD and are awaiting new treatments on the way. Inform them about DMD and invite them to have an impact on your future by helping to lobby for new treatments and fund DMD research.

Stand for Duchenne Canada, Jesse’s Journey and La Force DMD have come together with the Duchenne muscular dystrophy (DMD) community to voice our concern regarding the current lack of Health Canada-approved treatment options for Canadians living with this debilitating and life-limiting rare disease. Despite the fact that new therapies – Translarna (ataluren) and Exondys 51 (eteplirsen) – have been approved in Europe and the United States for several years now, in Canada we are still waiting.

  • Be aware

    The first step towards change is awareness.

    Make sure you are aware of your genetic profile

  • Write what comes from your heart

    “One love, one heart, one destiny.” ― Bob Marley

    It will touch other people and they will want to help!

  • Educate youself

    Knowledge is the first step towards progress.

    Read and keep reading. Information is power.

  • Share your story

    “When you stand and share your story in an empowering way, your story will heal you and heal somebody else.”

  • Make your mark

    Inspire other people.

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