Take Action!

You can help to broaden awarness

about this rare and devastating disease.

Yes, you can take action!

Raising awareness about Duchenne muscular dystrophy (DMD) is essential. You have an important role to play in raising public awareness around issues that affect our loved ones afflicted with DMD!

Sensitize key players in Quebec and across Canada, including your provincial and national MPs. A key element in your advocacy efforts is to share knowledge about new treatments (currently not available), so that they may become available quickly to children and young adults with DMD.

3 ways to take action

1 Become aware of your genetic profile.

Are you eligible for a new therapy for DMD – one that targets a specific genetic change or mutation in your DNA?

Action Links: What’s your genetic profile? | Which treatment and clinical research targets your genetic mutation?

2 Educate yourself.

Stay informed about which new treatments target different genetic mutations in DMD and about ongoing clinical trials.

Learn more about the symptoms, diagnosis and management of DMD.

Action Links: Learn about drug research | The drug approval process | The reimbursement of drug costs in Canada 

3 Share your story.

Be ready to become a spokesperson for your own cause. Today, anything is possible!

The best person to explain about Duchenne muscular dystrophy is you.

Action Links: Share Your Story | Share on Facebook | Share on Twitter

What else can you do?

You can meet with local federal and provincial MPs to let them know that you have DMD and are awaiting new treatments on the way. Inform them about DMD and invite them to have an impact on your future by helping to lobby for new treatments and fund DMD research.

  • Be aware

    The first step towards change is awareness.

    Make sure you are aware of your genetic profile

  • Write what comes from your heart

    “One love, one heart, one destiny.” ― Bob Marley

    It will touch other people and they will want to help!

  • Educate youself

    Knowledge is the first step towards progress.

    Read and keep reading. Information is power.

  • Share your story

    “When you stand and share your story in an empowering way, your story will heal you and heal somebody else.”

  • Make your mark

    Inspire other people.

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