3 ways to take action
1 Become aware of your genetic profile.
Are you eligible for a new therapy for DMD – one that targets a specific genetic change or mutation in your DNA?
Action Links: What’s your genetic profile? | Which treatment and clinical research targets your genetic mutation?
2 Educate yourself.
Stay informed about which new treatments target different genetic mutations in DMD and about ongoing clinical trials.
Learn more about the symptoms, diagnosis and management of DMD.
Action Links: Learn about drug research | The drug approval process | The reimbursement of drug costs in Canada
3 Share your story.
Be ready to become a spokesperson for your own cause. Today, anything is possible!
The best person to explain about Duchenne muscular dystrophy is you.
Action Links: Share Your Story | Share on Facebook | Share on Twitter
What else can you do?
You can meet with local federal and provincial MPs to let them know that you have DMD and are awaiting new treatments on the way. Inform them about DMD and invite them to have an impact on your future by helping to lobby for new treatments and fund DMD research.