Learning that your son is suffering from Duchenne muscular dystrophy is watching your child lose his muscular ability month after month. This is Jean-Philippe Morand’s reality: his son Victor is stricken with Duchenne muscular dystrophy. In adversity, some men go beyond their limits, and this is what Jean-Philippe will do this Sunday, May 28, by participating in the Ottawa Marathon in the company of his son Victor.
Actually, for the past 4 years, the Morand family has been holding a fundraising event called the “Dystrospin”. A portion of the money raised was invested in the purchase of a suitable wheelchair. It’s because of this kind of generosity that Jean-Philippe is able to participate in the Ottawa Marathon with his son. There’s nothing better than a father’s courage to raise awareness about Duchenne muscular dystrophy.
Hope for treatment
Duchenne muscular dystrophy is an incurable and 100% fatal disease. Duchenne muscular dystrophy is a rare genetic disorder that affects mainly boys. The progression of DMD is unforgiving: the body’s muscles gradually weaken, leaving the boys in a wheelchair at the age of 12, with a life expectancy of 20 to 30 years. Today there is hope for DMD, and several new treatments are on the horizon. This hope motivates Jean-Philippe to go beyond his limits for his son; but what he does also benefit all children with DMD.
Every effort to raise awareness about this rare and devastating disease will help us to facilitate access to new treatments.
For this reason, we, from the bottom of our hearts, invite you to share this story of courage.
We at La Force are proud to support Jean-Philippe Morand and his family.
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