Canadian Research osteoprotegerin (OPG)
Meeting with professor Jérôme Frenette about osteoprotegerin (OPG). We are producing a video series of interviews with Canadian researchers working on DMD. We have met many professors, and our [...]
Cycling across Canada to cure DMD
What’s it like to live with DMD? As a parent, to face the reality that your child has a fatal disease? As a person with DMD, to face an inevitable, premature death in your twenties? As a sibling, [...]
Decision from the FDA’s Office for Ataluren
Today, PTC Therapeutics, Inc, announced that the Office of New Drugs of the U.S. Food and Drug Administration has reiterated the FDA’s prior position and denied PTC’s appeal of the [...]
Short Docs series: Portrait of Duchenne Canada
Our web short documentary series, “Portrait of Duchenne Canada”, will be coming son! We will present the experiences of families and children with DMD across Canada.What’s it like to [...]
BRUCE’S UNBELIEVABLE GIFT TO HELP HIS PATIENT
Bruce Babington, an Osteopath, based in Ste-Agathe-des-Monts, Québec, is taking on the challenge of cycling across Canada in July 2018. He was inspired by his patient, Anakin Lacasse, who is [...]
TAKING ACTION PORTRAIT OF DUCHENNE – WHEN LIFE CHANGES
In this inspiring interview of our series “Portrait of Duchenne,” La Fondation La Force talks with Émilie Meeus, Oscar’s mother, raising funds for research into Duchenne muscular dystrophy [...]
News
2017, November 17th On a regular basis, team La Force will relay breaking news to the DMD community in News! our latest blog. We provide news highlights to give you quick-and-easy access to the [...]
The FDA closes the door to the approval of ataluren
The FDA has opted not to approve a treatment for DMD, ataluren from PTC Therapeutics. The FDA requires the PTC company to conduct yet another clinical trial in order to consider approval of the [...]
FDA Advisory Committee (AdCom) hears the voice of the DMD community
On September 28, 2017, the U.S. Food and Drug Administration (FDA) held an Advisory Committee (AdCom) meeting to discuss the new drug application for ataluren for oral suspension (PTC [...]
TAKING ACTION – PORTRAIT OF DUCHENNE – WHEN LIFE CHANGES
Alex Smith CEO, Harrison’s Fund, United Kingdom In this eighth interview of our series “ Portrait of Duchenne ”, La Fondation La Force talks with Alex Smith, CEO of Harrison’s Fund, a [...]
