What’s it like to live with DMD? As a parent, to face the reality that your child has a fatal disease? As a person with DMD, to face an inevitable, premature death in your twenties? As a sibling, [...]
Today, PTC Therapeutics, Inc, announced that the Office of New Drugs of the U.S. Food and Drug Administration has reiterated the FDA’s prior position and denied PTC’s appeal of the [...]
Our web short documentary series, “Portrait of Duchenne Canada”, will be coming son! We will present the experiences of families and children with DMD across Canada.What’s it like to [...]