Our web short documentary series, “Portrait of Duchenne Canada”, will be coming son!
We will present the experiences of families and children with DMD across Canada.What’s it like to live with Duchenne muscular dystrophy (DMD)? As a parent, to face the reality that your child has a fatal disease? As a person with DMD, to face an inevitable, premature death in your twenties? As a sibling, relative or friend, to face mourning your loss?
The journey is beyond words.
Our web short documentary series, “Portrait of Duchenne Canada”, will present the experiences of families and children with DMD. You will meet five Canadian families who are taking on the challenges of raising money and leading the way in advocating for access to new treatments. New treatments are on the horizon and families need to be heard to advocate for ways to access them quickly.
Today, more than ever, it’s time to share their stories.
Join the fight!
Duchenne muscular dystrophy (DMD) is a rare disease with no cure. Orphan drugs that target its causes are being developed now. But we need your help. Research is the only hope. And research needs funding.For the past 20 years, Canadian families in the DMD community have been raising funds for and awareness of DMD. Their actions and successes have funded current research. Now that new treatments are emerging, families need to unite and be heard in order to access new treatments quickly.
Our part is to tell their story. Sharing these stories is one step forward towards the cure.
MAKE SURE NOT TO MISS OUR SHORT DOCS SERIES
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