Portrait of Duchenne – For the love of his brother!
What’s it like to live with DMD? As a parent, to face the reality that your child has a fatal disease? As a person with DMD, to face an inevitable, premature death in your twenties? As a sibling, relative or friend, to face mourning your loss? The journey is beyond words. Our Web short documentary […]
Portrait of Duchenne – Victor’s unforgettable experience!
Giving an incredible experience to your child Victor Morand, 11 years old: “I like it because they give you a lot of encouragement and it’s one of the only activities I can do with my dad.” It took about two years of going back and forward to doctor appointments before the Morand family got a […]
Capricor initiates HOPE-2 clinical trial
One of the objectives of our team is to inform you about new treatments. Here’s the latest news from a recent press released by Capricor which announces the clinical trial HOPE-2. Enjoy reading and thank you for sharing these articles within the DMD community. CAP-1002 aim to maintain or improve cardiac and skeletal muscle function […]
Edasalonexent: Positive results and no side effects
One of the objectives of our team is to inform you about new treatments. Here’s the latest news from a recent Catabasis press release about edasalonexent. Enjoy reading and thank you for sharing these articles within the DMD community. The MoveDMD trial through 48 weeks of edasalonexent treatment “ We believe that these effects […]
A clinical trial on utrophin modulation is completed
One of the objectives of our team is to inform you about new treatments. You can catch up on the last news in the latest press release by Summit Therapeutics company about ezutromid, a utrophin modulation. We wish you a happy reading and thank you for sharing those articles within the DMD community. “PhaseOutDMD” clinical […]
Portrait of Duchenne – Every action counts!
A chance encounter launched groundbreaking DMD research When Max Sedmihradsky was two-years-old, he received the DMD diagnosis. The news was devastating beyond words for his parents Kerry and Andrew. After a moment of profound sadness, Andrew came up with the idea for Max’s Big Ride. Every year he cycles between Ottawa and Hamilton, Ontario, with […]
